Personalized Experiences to Inform Improved Communication for Minorities With Life Limiting Illness
The purpose of this research is to develop patient-centered palliative care interventions to improve patient-provider communication and Quality of Life (QoL) of ethnic and racial minority patients living with life-limiting illnesses. Eliciting personal experiences is an effective way for patients to communicate their cultural values and beliefs. This study will assess how to integrate the patients' personal experience narratives into the electronic health record (EHR). The primary hypothesis is that the implementation of a patient-centered intervention to elicit personal experiences that are included in the EHR will improve patient-provider communication and patients' QoL.
Ask AI to explain this studyKey things to know
This describes the study’s primary purpose.
The study team can explain what participation involves.
These are broad labels—not an eligibility decision.
Checked against the public recordLast updated Feb 18, 2021 · Source: ClinicalTrials.gov
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Observational
Locations may change over time.
Study sponsor
What this study is about
- Purpose
- Not specified
- Study type
- Observational
- Phase
- Not applicable
- Sponsor
- University of Colorado, Denver
- Interventions being studied
- Behavioral: Storytelling Intervention for Patient Participants; Behavioral: Storytelling Intervention for Nurse Participants
How this study is categorized
These labels come from structured fields and exact terms in the public record.
Who may be able to participate
The sponsor separates these requirements into two groups. You do not need to interpret them alone—use them to guide a conversation with the study team.
- Patients
- 18 years of age or older
- able to read English
- capable of giving informed consent
- self-identifying as part of a racial or ethnic minority
- diagnosed with at least one LLI. The operational definition of LLI eligible for this study includes the following diagnoses: 1. metastatic solid cancer or inoperable lung cancer; 2. COPD with FEV1 values \< 35% predicted or oxygen dependence; 3. New York Heart Association Class III or IV heart failure (CHF). Inclusion criteria: Nurse
- 18 years of age or older
- Confirm verbally that they were involved in the care of a patient who is participating in the storytelling intervention
Important: This is the sponsor’s public criteria, not a determination of eligibility. The study team must review your individual situation.
U.S. locations
- University of Colorado HospitalAurora, Colorado
Source and freshness
Processed from ClinicalTrials.gov. Last public update: Feb 18, 2021. Always confirm current availability with the study team.